People can and do survive strokes that damage large areas or vital parts of the brain. But sometimes a more serious stroke might lead to someone becoming very unwell, or their life being at risk. The medical team should help you to understand what is happening and what treatment they are giving. With rapid medical help, many people can survive an initial stroke.

Appropriate and timely treatment, care and rehabilitation can allow people to make the best recovery possible for them. But even with good care, a severe stroke may leave someone with serious disabilities or unable to live independently. Very occasionally a stroke can be catastrophic enough that someone may not survive the initial days.

Palliative care, which is sometimes called end of life care, is support for people who won’t recover from an illness. This care can last for as long as it is needed and could be days, months or longer. It should help the person live well for as long as they can and die with dignity.
The aim of palliative care is to maximise your quality of life by treating and relieving the symptoms and side effects of your illness, combined with supporting you and your family/carer practically and emotionally.

Accepting a referral simply means you will receive additional support to promote your quality of life, based on your individual choices, so you can live as fully as possible for as long as possible. It can be provided alongside active treatment of your condition such as chemotherapy.

“Palliative care services actively promote choice and control over personal decisions, putting you at the centre of everything.”

This can mean managing pain and symptoms, as well as psychological, spiritual and social support for the person and their family.

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Where can end of life care be given?

It is possible to have end of life care at home, at a care home, in a hospital, or a hospice. The choice depends on the advice of the healthcare team, as well as the wishes of the person and their family. If it’s at home or in a care home, you will be provided with a main point of contact. Someone in their own home may have care from community palliative care nurses and other specialist professionals.

They can also spend time at a hospice or use the support services offered at a hospice. Care in a hospital and hospice is free. At home or in a care home, the NHS or local council may fund part of the care provided. Funding and help available varies between UK countries and local areas. Your specialist nursing team or GP practice can help you understand what’s available in your area.

Health professionals can offer help and support to relieve symptoms and make the person more comfortable and you should never be expected to manage alone.

Leeds
Calderdale and Huddersfield Specialist Palliative Care - CHFT
Bradford, Airedale and Wharfedale Bradford District and Craven Palliative Care Network
Wakefield / Mid Yorkshire Palliative Care - Mid York
West Yorkshire Hospices Hospices :: West Yorkshire Health & Care Partnership (wypartnership.co.uk)
Harrogate

Bereavement and grieving after stroke

When you lose someone to a stroke, it can be a very emotional time, as well as a time of great change. It can be very difficult for family members and friends to cope with. If you need someone to talk to now, contact the Stroke Association helpline. There are also dedicated bereavement charities that can offer you help and support, such as Cruse

More information can be found at Bereavement and grieving after stroke | Stroke Association.

Leeds Mindwell Cruse bereavement support: Leeds Cruse Bereavement Support - MindWell
Calderdale and Huddersfield Mind: Grief and Loss Support Service - Leeds Mind
Bradford, Airedale and Wharfedale What support is there for dealing with bereavement? - Palliative Care (links to the bereavement support page on the website)
Wakefield / Mid Yorkshire Wakefield & District: Telephone 01977 781452
Wakefield & District Bereavement Support Service – Wakefield Families Together
Harrogate Just B Bereavement services: Telephone 01423 856790
Just B website

Any specific medical queries should be directed to your health professional team.

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